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sundaymorningstaple
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Postby sundaymorningstaple » Sat, 30 Mar 2013 6:43 pm

JR8, Lyme Disease, perchance?

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Oh dear

Postby The Ref » Sat, 30 Mar 2013 7:10 pm

JR8 wrote:I'm slowly recuperating from something equally as obscure, though tick-borne and I have numbness rather than pain, that I somehow picked up on a dive trip in a remote corner of the Peens...


The last thing you want is numbness in any part of your Peens ;-)

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Postby JR8 » Sat, 30 Mar 2013 7:34 pm

sundaymorningstaple wrote:JR8, Lyme Disease, perchance?


No. In a way I can also say 'alas not'! The initial diagnosis (of multiple sclerosis) took weeks and turned out to be self-interested, and incorrect: Alarmingly so, as it would mean annual but random relapses with a month+ in bed, leading to progressive deterioration and an early and painful death - which takes a little bit to stomach when you're still youngish and finally have life nicely sorted out.

I had that hanging over me for the 3-4 months I was bed-ridden in hospital. The final proposed treatment was using the chemotherapy drug Ralenova, that does all the usual, hair-loss etc, but also causes damage to the heart - considered the lesser of two evils in the case of cancer or MS. All rather a nightmare, added to by having to have a translator act for me, every time I had comms with that doctor.

I went back home to get a 2nd opinion from three of the top specialist neurologists (and so on) within Europe.

Diagnosis:
http://en.wikipedia.org/wiki/Miller_fisher_syndrome
(variant of Guillain-Barre syndrome)

On the bright side I should fully recover, though it will take up to 18 months. I tell my wife that walking to the beer shop is good exercise for me, and surely it's a positive to have such an incentive to get out and about. For some reason she doesn't see it in quite the same way :lol:


p.s. Lol Ref! :lol:

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Postby sundaymorningstaple » Sat, 30 Mar 2013 7:46 pm

Damn. Doesn't sound very nice at all. But at least you are in rare/eclectic company according to wiki. Hope you are kicking (?) it's butt. Hang in there. That sh*t shouldn't happen to anybody.

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Postby x9200 » Sat, 30 Mar 2013 8:26 pm

Damn, JR8, I must say I admire your spirit. 3-4 month with possible diagnosis of SM hardly anything was to be noticed in your posts. With first symptoms of SM in your age it usually equals to a very bad prognosis. Good it turned only to be the Guillain-Barre syndrome.
Get well and report soon to an Eagles Gathering especially that some members already started to question if you really exist :)

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Postby the lynx » Sat, 30 Mar 2013 9:47 pm

x9200 wrote:Damn, JR8, I must say I admire your spirit. 3-4 month with possible diagnosis of SM hardly anything was to be noticed in your posts. With first symptoms of SM in your age it usually equals to a very bad prognosis. Good it turned only to be the Guillain-Barre syndrome.
Get well and report soon to an Eagles Gathering especially that some members already started to question if you really exist :)


If he is still in Germany, that'd be not possible to fly all the way here! :P

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Postby sundaymorningstaple » Sat, 30 Mar 2013 10:46 pm

A year ago, he flew all the way back just to go diving for a weekend! :o

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Postby JR8 » Sat, 30 Mar 2013 11:08 pm

sundaymorningstaple wrote:Damn. Doesn't sound very nice at all. But at least you are in rare/eclectic company according to wiki. Hope you are kicking (?) it's butt. Hang in there. That sh*t shouldn't happen to anybody.


Hehehe... hadn't looked at that, well High-5 to William 'The Fridge' Perry, fine company indeed! :)

http://www.youtube.com/watch?v=8BZGy1XfYPU
The Fridge - highlights
(The touch down at c0.55-1.05 is wild!)

http://www.youtube.com/watch?v=1Wl9au4knak
The Fridge's Monster Tackle :shock:

http://www.youtube.com/watch?v=E_jidra8EMU
William Refrigerator Perry's Battle


X9200 wrote: Damn, JR8, I must say I admire your spirit. 3-4 month with possible diagnosis of SM hardly anything was to be noticed in your posts. With first symptoms of SM in your age it usually equals to a very bad prognosis. Good it turned only to be the Guillain-Barre syndrome.
Get well and report soon to an Eagles Gathering especially that some members already started to question if you really exist[/i]


Hehehe thanks for your kind words. I think I did briefly lose the plot here once or twice, but that was where my head was at. We'll be back in-country in a few months, and I'm looking forward to finally getting to put faces to id's.

[I've had this happen before... being in a web-group for several years, and then having a physical meet-up. It is fascinating matching up real-life personality with web-id personality. Some people are 1:1 identical, and others are very different! So everybody had their forum id written on a sticker, affixed to their chests, and you think a-ha, that's 'xyz123' and you feel as if you know them, but in some ways you don't at all].


--- Edit to add 3rd link.
Last edited by JR8 on Sun, 31 Mar 2013 2:38 am, edited 1 time in total.

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Postby JR8 » Sat, 30 Mar 2013 11:27 pm

sundaymorningstaple wrote:A year ago, he flew all the way back just to go diving for a weekend! :o


Oh yeah, I'd forgotten about that :)

Mind you I flew from SG to Japan for a weekends skiing. And from SG to Egypt for a weeks diving*.



* The diving in Egypt can be good but not quite on a par with SE Asia. I'd already been to Egypt about ten times. But the attraction that time, was that we had 15 hard-core divers, who all knew the region and operator inside out, and all chatted over the years on their web-forum. So when we planned the trip, we were not only able to get about 50% off the hotel, and the diving was free (!), we also got to charter our own diving day-boat and crew. Best boat, best crew, and being taken to 3+ dive sites every day that are usually never dived by regular holiday-makers. We even had staff skipping their one day off a week, to come and leisure-dive with our group. Even the 'big boss' who I'd never seen dive before.

We got that dream deal. The dive centre got a lot of PR to put on their website. Maybe not so crazy travelling that far after all lol :)

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Postby Brah » Sun, 31 Mar 2013 9:36 am

Well if you've had this all along, you certainly didn't let it show. No way I'd be able to do that.

But good to see Andy Griffith's name among those afflicted, he lived a long and fulfilling life.

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Postby JR8 » Sun, 31 Mar 2013 9:57 am

Brah wrote:Well if you've had this all along, you certainly didn't let it show. No way I'd be able to do that.




And you're speaking to ... ... ... ?



Hehehe clues please...

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Postby Brah » Sun, 31 Mar 2013 11:21 am

Just from what you've been posting all along, it didn't come through that you were going through all that. If it were me you'd know it up front, I'm too much of a whinger.

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Postby JR8 » Sun, 31 Mar 2013 4:58 pm

I suppose when you're staring down the barrel, you don't have much time for 'chit-chat'.

But 'tis ok. I'm getting better, and am gonna be ok :)

TTYL!

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Postby BedokAmerican » Mon, 15 Apr 2013 6:44 pm

I just read some of his blog. It's funny how he mentions "retardation of locals" and how men should try to meet women during the day as opposed to at night.

I personally don't see how it's possible for anybody to meet a potential mate in this city/nation while out and about during the day, mainly because 99% of the people have their faces glued to their cell phone screens 99% of the time and are oblivious to anything and anyone around them. But I suppose it's that way now in many major cities.

I'm so glad I met my husband before the invention of the iPhone 8-)

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Postby iamsen » Tue, 16 Apr 2013 2:53 am

You never know. I was opening a new bank account sometime last year and the teller was very obviously hitting on me. 'oh you live at xx, I always go there for supper with my friends, maybe I call you next time', etc.


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